One pill makes you larger
And one pill makes you small,
And the ones that mother gives you
Don't do anything at all.
-White Rabbit, Jefferson Airplane 1967
I awoke this morning with a list of items I needed to tackle today. The real trick for me is trying to balance all my work around my family and husband. Today's list consists of running to the post office to mail off many candles, make some phone calls for FRG and our upcoming Family Day, write an article for our unit newsletter, and get my husband's medications in order. So armed with my extra large cup of coffee and my Vietnam Era music playing in the background, I hit the ground running. I had to buy my husband one of those seven day a week pill reminder boxes, or as we lovingly refer to it as, the Old Man Pill Box. Once a week I must refill it for twice to three times a day, and then double check myself as I can be forgetful sometimes. Once completed, I must then go through and double check all the original bottles they came in just to make sure he has plenty in supply or begin the refill process. I wondered how many others are on the same meds and what do all these do for my husband? Thought the White Rabbit song reference really played well with my blog this morning!
Citalpram
• (Commonly known as Celexa, Cipramil) Anti-depressant used to treat major depression, social anxiety disorder, panic disorder and OCD. My husband takes 40mg twice a day. Side effects: fatigue, drowsiness, dry mouth, increased sweating (hyperhidrosis), trembling, headache, dizziness, excessive yawning, sleep disturbances, insomnia, cardiac arrhythmia, bruxism, hallucinations, blood pressure changes, nausea and/or vomiting, diarrhea, heightened anorgasmia in females, impotence and ejaculatory problems in males. In rare cases (around over 1% of cases), some allergic reactions, convulsions, mood swings, anxiety and confusion have been reported. Also sedation may be present during treatment of citalopram. I can vouch for the sweating, headaches (which has worsened because he has TBI in which he also suffers headaches from), Impotence, and the rest? Well, where does one begin and separate from PTSD symptoms he already suffered from? This is the primary cause of impotence in Veteran's or so we were told by his physician. Her take was be crazy, or no sex...."I'll take No Sex Life Alex, for 500".
Magnesium Dietary Mineral
• Taken at 400 mg per day, this was prescribed by his primary care physician, who is really really into holistic medicine practices, if you remember my past reference to her with the fish oils and vitamins to make him poop. Now supposedly, this is to help with his headaches. If it does, I can't tell. It is "being investigated" for the treatment of migraine headaches.Ativan
• Commonly known as Lorazepam (We call it the crazy pill). My husband has to take 0.5 three times a day, and then two more at night. It is used for the management of anxiety disorders, the short-term relief of symptoms of anxiety or anxiety associated with depression. The effectiveness of lorazepam and other benzodiazepines has not been adequately studied for treatment beyond 4 months. (nice as my husband has been taking this for three years now) Lorazepam can cause physical dependence (even better). The most common side effects associated with lorazepam are sedation, dizziness, weakness, and unsteadiness. Other side effects include a feeling of depression, loss of orientation, headache, and sleep disturbance. Now the thing that disturbs me, is he already had depression and headaches. So they give him this one, which causes more depression and more headaches. Kind of fighting a losing battle here between medications.
Trazadone
• AKA Zombie Maker. 100 mg at night. It is another anti-depressant used to treat Panic Disorders, Diabetic Neuropathy, Bulimia, OCD, Alcohol Withdrawal, Schizophrenia, other psychoses and Complex Regional Pain Syndrome. Last but not least, Control of nightmares or other sleep disturbances. The most common adverse reactions encountered are drowsiness, nausea/vomiting, headache and dry mouth. (Here we go again with the headaches) Now this is the medicine he takes at night for nightmares, sleepwalking, and night terrors. This is literally a zombie maker as the world could blow up around him and he would sleep right through it. The only problem I have with this medicine is that it leaves him groggy and irritable the rest of the day but does knock him out and we can all rest.
Gabapentin
• Also known as Neurontin. This is taken 3 times a day at 300mg. It was originally developed for the treatment of epilepsy, and currently, Gabapentin is widely used to relieve pain, especially neuropathic pain. This was prescribed for my husband's back and knee pain which is leftover from injuries which occurred from an IED explosion in Iraq. Gabapentin is widely believed to help patients with post-operative chronic pain. So far, we haven't seen any difference in him on this medication. Most common side effects in adult patients include dizziness, drowsiness, and (swelling of extremities); these mainly occur at higher doses, in the elderly. Also, children 3–12 years of age were observed to be susceptible to mild-to-moderate mood swings, hostility, concentration problems, and hyperactivity.
Tylenol with Codeine
• Prescribed 1-2 tablets every four hours for severe pain. He doesn't take this one every day but only on a need to need basis. This is for pain he feels in his lower back, both knees and for severe migraine headaches.
Omeprazole
• Commonly known as Prilosec and prescribed to my husband for gastric/stomach problems such as severe heartburn and indigestion which has been causes from all the other medications. Taken at 20mg twice a day. Hell, if I had to take this much, I would have stomach problems too!
Tizanidine
• Commonly known as Zanaflex. Prescribed to my husband for severe muscular spasms. As need basis, he takes 4 mg (2 tabs) three times a day. It is used to treat the spasms, cramping, and tightness of muscles caused by medical problems such as multiple sclerosis, spastic diplegia, back pain, or certain other injuries to the spine or central nervous system. It is also prescribed off-label for migraine headaches, as a sleep aid, and as an anticonvulsant. It is also prescribed for some symptoms of fibromyalgia. This one really knocks him on his butt too.
So which one is best for him, and which one makes him worse? I look over all these and an overwhelming sadness fills me. My husband was one who never took anything! I think in the past ten years, I can remember him being sick once. His cure for the common cold was hot tea with a shot of moonshine (hey, we are from Tennessee-Moonshine cures all that ails ya!). Occasionally he might get a headache and I would literally have to force some tylenol or Goody's powder down him! Who would have thought my husband, after war, would come home and require so much maintenance and medications! Now as we are awaiting his appointment for the TBI doctor (Traumatic Brain Injury), I am curious to see if they will add yet another pill to his repertoire of many. I can't really complain as his mood, his anger, and triggered episodes are a lot more dulled, but in the same sense he is a walking zombie all the time. This has caused our sex life to disappear, makes him sleep hard and for long hours at a time, and his mood more irritable (although more tolerable with the meds). Is there really ever going to be a happy medium in
Here's the laundry list of my husband's meds:
ReplyDeleteAcetaminophen
Amitripyline Hcl
Bupropion Hcl
Clonazepam
Diphenhydramine
Hydroxyzine Pamoate
Levothyroxine
Lisinopril
Meloxicam
Polythylene Glycol
Propanolol Hcl
Zonisamide
We were at the VA on Monday and they're going to add Zantac to the list to combat the stomach issues some of these meds are causing and Benadryl to help him sleep.
Every time I go to the post office there's a white package of meds waiting to be picked up.
*Sigh*
Holy Moly! I thought ours was bad!!! Does he have an old man pill case too? Wonder if they will add to ours because of the new diagnosis of TBI? His appointment is not until August but just wondered what to expect. I will not complain about meds again....poor B. How the hell do you keep up with it all????? Much love~
ReplyDeleteI am wondering if there is a way to fix the sex part? My husband and I are wanting to start a family very soon and you can't have kids without it. Please tell me there is a cure or something I can do. He has both PTSD & TBI . my email is tick_tock_girl@yahoo.com
ReplyDeleteI sent you an email this morning, but for others...the best thing your Veteran can do is talk to their doctor or psychiatrist. If you don't tell them you are experiencing side effects and one of those is causing the "elevator not going all the way to the top", then how will they know? For other spouses I have talked to, changing the anti-depressants they take will help in this department. Some have experienced an increase in the sexual drive, and some have gone back to normal status. However, there are always some of our poor guys who just have no drive due to whole PTSD cocktail which is not their fault. It's a price we must endure due to keep them mentally healthy. Talk to your husband without being hurting his ego and pride, support him, and then make a beeline to the doctor first chance you get to discuss the issues. The hardest part is just getting your spouse to admit to another stranger that he is failing in the bedroom. I hope this helps and we are still researching other medications ourselves. Good luck!!!
ReplyDeleteomg..I what are they doing to our men...here is my list and he has PTSD/TBI also..
ReplyDeleteclonazepam .5 mg 1x a day
omerpazole 20 mg 1x a day
citalopram 40mg 1x a day
multi vitamin 1x a day
vicodin 500 mg 3x a day
vit D 1x a week
meloxicam 15mg 1/2 pill 1x a day
trazodone 100mg 1 1/2 at night
divalproex 500mg 3 at night
prazosin 2mg 6 at night
amitriptyline 10 mg 2 at night
tizanidine 4 mg 2 at night
gabapentin 400mg 3x a day
just 8 months ago before PTSD raised it's ugly head he was a hard worker was a police officer and a contractor climbing ladders 40 ft in the air...now after all this sadating he walks with a cane cause he has no balance (boy i wonder why) has such bad tremmors and shakes he can barley hold a bottle of water to his mouth with out spilling it all over himself. has to be reminded what he's doing all day long. he is deterating before my eyes. why do they medicate/sadate these men so much. it really saddens me. i have been reading things of medical marajuana and i think i would rather him smoke a joint and get rid of most of these meds atleast he would be functional and have an appitite. and yeah i wouldn't be able to function with out my old man pill container. as for sex they gave him a viagra but said he could take it 4 hours after afternoon and has to wait 4 hours after to take night meds...with 5 kids yeah right...i can't belive how many pills they give them scarey
My husband has almost died from some of these medications. Get private help. There are private doctors and psychologists who specialize in PTSD. The VA is killing vets. They don't know how to treat them. My husband is almost off of all medications. We have a private psychologist who is undoing all the damage the VA has done to our marriage. What would have been just recovery from PTSD - which is doable - turned into a 6 year road to hell - thanks to the VA and all their pill pushing.
ReplyDeleteThe cocktails are lethal. Our son almost died from them and many more have died.
ReplyDeletehttp://www.youtube.com/watch?v=9iZwOVjZ3xk
Many times PTSD is diagnosed because a psychiatric illness shows up within one year of TBI. It's actually damage to the brain that inhibits the body's ability to stave off the fear response, aka panic disorder. I am not a vet, but I have PTSD and experience a TBI and panic disorder reared nearly a year later. I LOATHE the cocktails that psychiatrists throw at us, they just don't know what they're doing, the best option is to go to a neuropsychiatrist that understands the anatomy of the brain. Research I've found suggests a build up of lactic acid in the brain for those of us with PD, exercise can help with this but obviously isn't enough on its own.
ReplyDeleteSeroquel was effective at sedating me, but I noticed a quick tolerance to it and weight gain (which I don't care about if I get relief). Please be sure all docs are you starting you out at the lowest possible dose. Zyprexa is pretty heavy but it worked for a while, and so did Paxil until it abruptly stopped working after several years. Xanax is so short acting it's a PITA, I'm going back today to see if Klonopin can help give me my life back.
Anyway, I am so sorry any of you have to go through this because of the war. People shouldn't have to suffer.
Hi, here's mine...Vicodin 1 - 2 tabs every 6 hr, Gabapentin 900mgs x 3 daily, Cymablta, 120mgs daily, ativan 1mg x 4 daily, atenolol 25 mg/day, simvastatin 10mgs/day, certirizine 10mg/day, baclofen, 10mgs/day, dextroamphetamine 30mgs/ day...thats it.
ReplyDeleteI have the war gulf syndrome. But I am a civilian. I developed it just after receiving a flu vaccine within squalen . Very sick since 2009 .this syndrome is not in relation with psychological disorder by exactly with brain damage.it's now possible to compare encephalitis myalgique and MRI of vets since one week
ReplyDelete